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Friday Mail

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May 22, 2015

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Join us for a Tribute in honor of

Dohn Hoyle

for 44 years of dedication to Disability Advocacy

Thursday, June 18th, 6:00 pm

University Marriott, 300 M.A.C. Avenue

East Lansing, MI 48823

 *** Register here for Dohn's Tribute ***


The Arc Michigan Conference

June 18th & 19th

Highlights include presentations by

Lt. Governor Brian Calley and Sharon Ellis, State of Michigan's ADA Compliance Director

*** Register ONLINE for the Conference ***

        Print and Mail Registration Form (pdf)

Tentative Agenda (pdf)  Conference Flyer (pdf)

University Marriott, 300 M.A.C., East Lansing, Michigan

News Items

Opportunities for Comments and Involvement

Celena L. Barnes Family Leadership Inspiration Award - Nominations due June 5, 2015

The Parent Involvement Committee (PIC) of the Michigan Interagency Coordinating Council (MICC) is pleased to announce a special award in memory of a dear friend and colleague, Celena L. Barnes. Celena passed away September 2014 and the PIC would like to keep her memory alive, with your help by selecting an outstanding parent leader to be awarded the "Celena L. Barnes Family Leadership Inspiration Award."


While the Parent Involvement Committee (PIC) of Michigan Interagency Coordinating Council (MICC) fails to acknowledge it, Celena was employed as a Parent Mentor for Michigan Alliance for Families and The Arc Michigan for four very successful years. In fact, Celena was our first Parent Mentor for the Detroit Area. We do, however, suggest that nominees be forwarded to the MICC Staff liaison as indicated in the materials. See letter from Parent Involvement Committee (pdf) and Celena L. Barnes Family Leadership Award application (pdf).  top

Arc of Livingston Seeking Executive Director - Respond by June 5

The Arc of Livingston, a not- for-profit organization providing support and advocacy for individuals with intellectual and developmental disabilities and their families throughout Livingston county, is seeking an energetic, committed, and experienced leader. Click here for more information. To apply, forward your resume and a cover letter outlining your relevant skills and experience, minimum salary requirement, and how you meet the minimum qualifications by June 5, 2015 to Click here for more information (pdf) top

Governors Give Back Big Money to Washington While Unemployment, Poverty Continues for their Citizens with Disabilities From,

Bethesda, Maryland---- States around America returned millions of dollars to the federal government that could have been used to enable people with disabilities to get jobs and careers. This is despite the fact that 70% of people with disabilities are out of the workforce, and disability benefits and healthcare are costing billions to taxpayers.

Vocational rehabilitation and workforce development programs, when resources are allocated to proven best practices, can enable people with disabilities to secure stable employment. In 2012, vocational rehabilitation agencies helped 177,172 Americans with disabilities get jobs and careers. These programs operate by having the federal government match nearly $4 for every $1 that is spent by the individual states. However, if the states fail to spend the money or come up with matching funds, then the funds go back to the federal government. Click HERE to read more.

Able Bills Introduced May 5th

from RWC Advocacy

These bills, enabling ABLE in state law, were introduced May 5th:

          House Bill 4541 

          House Bill 4542  

          House Bill 4543
          House Bill 4544                       

Action Alert!  Time to Act to Protect the Lifeline

Medicaid, Social Security Disability Insurance (SSDI), and other lifeline programs for people with I/DD are under attack. It’s time to act! We are calling on all chapters of The Arc to visit your Members of Congress during the Memorial Day and July 4th recesses.

We have released a new Chapter Toolkit to help you advocate and do meetings with your Members of Congress. There are two recesses coming up:

House of Representatives:
May Recess – May 22-31
June/July Recess – June 27-July 6

May Recess – May 25-29
June/July Recess – June 29-July 6

We need chapters and advocates to engage with your Members of Con gress – now is the time to act, whether you already have a relationship with your Members of Congress or this is your first time engaging at this level. We need YOU to show Members of Congress why the lifeline programs are so vital to the lives and independence of people with I/DD.  top

Department Issues SIS Use Guidance

The attached file (Waldrop v. New Mexico Human Services), contains the findings from a SIS lawsuit that was filed in New Mexico. It says that if the state wants to use the SIS to determine services (which is what it is not supposed to be used for in Michigan), then individuals are entitled to advanced notice and Medicaid Fair Hearings.

Thomas Renwick, Director of the Bureau of Community Based Services, BHDDA, issued a clarification on use of the Michigan Supports Implementation Scale (SIS). In his memo, Mr. Renwick indicated that “The SIS should be used to enhance and support the person-centered planning process. As with all assessments, the SIS is voluntary and should not be tied to determinations of medical necessity and the authorization of behavioral health services. Supports and services cannot be denied, reduced or discontinued if a consumer and/or guardian refuse to cooperate with the assessment process.”

Mr. Renwick also indicated that the Michigan Department of Community Health’s (MDCH) SIS workgroup was finalizing the Michigan SIS Implementation Manual, which will serve as a guide in outlining the requirements and procedures related to the implementation of the SIS in Michigan.

Persons with questions regarding SIS implementation should contact Belinda Hawks at    top

Michigan Developmental Disabilities Council Accepting Nominations for Spirit of Accessibility Award

If you would like to nominate an individual or organization, please fill out this form and submit it using the instructions by June 10, 2015 by 5:00pm. This award will be presented during the Michigan Transportation Provider Summit in July 2015. Please see the attached application to apply.    top   

The DD Council wants to hear from YOU!

Are you a person with a developmental disability, a family member of a person with a developmental disability, or an advocate for people with disabilities?

The Michigan Developmental Disabilities Council is gathering information for its next 5-year state plan from 2016 through September 2021. One of the areas we are looking at is the quality of life for families of children with disabilities from birth to the age of 21. This is your chance to tell us what’s important to you and what you want the DD Council to do about it.

Join us to share your story, explore the challenges that affect your life and talk about the issues that are important to you. Please visit the DD Council Website for registration information.            


If you are unable to give feedback in person, the DDC is using the Beach Family Quality of Life online survey to assess families' perceptions of their satisfaction with different aspects of family quality of life. The survey, available until May 30th, 2015, is about how you feel about your life together as a family. If you have any questions, please call 517.335.3158. Click here to participate in the survey:   top

ADA 25  Legacy Bus Tour Arrives at Detroit's Eastern Market - July 21st 

Events begin at 10 AM and will end after 3 PM. Click here for flyer (pdf). For more information, contact Loren Glover at (313) 831-0202.  top

NASUAD's April 2015 Edition of the State Medicaid Integration Tracker

The State Medicaid Integration Tracker is a monthly report summarizing state actions in Managed Long Term Services and Supports (MLTSS), as well as State Demonstrations to Integrate Care for Dual Eligible Individuals and other Medicare-Medicaid Coordination Initiatives.

The Tracker also includes updates on state participation in other LTSS activities, including: the Balancing Incentive Program; Medicaid State Plan Amendments under §1915(i); Community First Choice Option under §1915(k); and Medicaid Health Homes.

MI Health Link Webinar Presentation Handouts

This link will take you to the handouts from a 4/2/15 webinar about MI Health Link, the new health care pilot that combines Medicare and Medicaid for people who receive both living in the UP, Southwestern Michigan, and Macomb and Wayne Counties. The presentation was done by Nick Lyon, Director of Michigan Department of Community Health. top

UCP's New Community-Driven Resource for People With Disabilities
UCP is pleased to introduce a new community-driven resource for people with disabilities called My Life Without Limits. This initiative is a natural companion to UCP’s My Child Without Limits program, which was developed for the parents and family members of children with disabilities. A flagship website and online community,, will serve as the new program's focal point and is intended to become an online hub for people with a range of disabilities.

My Life Without Limits is designed to allow people with disabilities to join and receive the latest news and other benefits of community membership such as writing guest blogs, commenting on posts and resource pages and participating in polls and surveys. In the forum - coming soon - members can stir up conversations and ask for advice. Information and resources pertaining to education, entertainment and lifestyle, health and wellness, travel, relationships and more will be available and updated, with guidance from community members themselves. And, people can share new resources or upcoming events on the site or using the #MyLifeWithoutLimits hashtag on social media. top

Joint letter from DOJ and DHHS addressing the importance of states' implementation of the Final Rule while maintaining Title II obligations under the ADA

The Department of Justice’s Civil Rights Division and the Department of Health and Human Services’ Office for Civil Rights (OCR) jointly issued the attached letter (pdf), which addresses the importance of States’ implementing the Final Rule in ways that comply with their obligations under Title II of the Americans with Disabilities Act (ADA). The letter instructs States to consider whether reasonable modifications are necessary to avoid placing individuals who receive home care services at serious risk of institutionalization or segregation. Specifically, the letter explains that states need to consider reasonable modifications to policies capping overtime and travel time for home care workers, including exceptions to these caps when individuals with disabilities otherwise would be placed at serious risk of institutionalization. top

Michigan Alliance for Families DVD “Making the Most of Early On®”  "Making the Most of Earlyon" is designed to help parents better understand and access the system of supports and services for children from birth through age three.
This video is chaptered into six easy to navigate topics:

  • What is Early On?

  • Parent to Parent Advice

  • Natural Environments

  • Problem Solving

  • Transition: Leaving Early On

  • Parent Survey

Each topic includes options for Spanish subtitles, Arabic subtitles, and English closed caption. In addition to the DVD, parents can find more early intervention resources at:

Parents and professionals can view the videos via the Michigan Alliance for Families YouTube Channel  at

A limited quantity of DVDs is available.

“Making the Most of Early On®” was produced through an IDEA grant awarded by the Michigan Department of Education to Michigan Alliance for Families.


Michigan Alliance for Families' upcoming workshops can be viewed at:  Upcoming and archived Webinars can be viewed at:

Check out our new brochure (pdf)        top

Michigan History of Our State Institutions for People with Developmental Disabilities

This video documents this regretful history and celebrates the hard work of families and advocates with the final closure of our last institution in Michigan in 2010.  top

The White House Disability Group E-mail Distribution List
In order to keep the public informed about various disability issues the White House has been hosting monthly calls. To learn about future calls, request to be added to the White House Disability email distribution list, by visiting the White House website.

These calls are open to the public and offer a unique opportunity to hear about important disability issues from individuals who work in the Federal government. You can also submit questions before the call at                              

Michigan Alliance for Families Web site offers Resources to help Families

Michigan Alliance for Families is excited to announce that our website ( now includes information to help families become more involved in the growth and development of infants and toddlers.

Michigan Alliance for Families, in partnership with Early On Michigan, announces resources to help families know their rights, better communicate their child’s needs, support the development of infants and toddlers, and prepare for the transition out of Early On into the preschool years. These resources are available to families, Early On Service Coordinators and Service Providers to increase the involvement of Michigan families in the growth and development of infants and toddlers.
Website resources include:

Handouts and video information on developmental milestones and how to promote development and learning through play

  • Handouts and video information to help families prepare to leave Early On and move on to Preschool
  • Learning tools to help families improve communication skills
  • Information to help families know their rights (Procedural Safeguards), including evaluation, Individualized Family Service Plan (IFSP) development, natural environments and service coordination.                       top



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